Stroke in Aboriginal and Torres Strait Islander people; incidence, mortality and disease burden

Following a National Aboriginal and Torres Strait Islander Peoples Stroke Research Summit in March 2014, held at SAHMRI, led by Alex Brown, Tim Kleinig and Amanda Thrift, the SAiNTS Study was conceived. SAiNTSS will look more closely at stroke services for Aboriginal and Torres Strait Islander people, including asking Aboriginal and Torres Strait Islander people, their family and health workers about their experience.

This pilot explores data around access, cultural safety and patient’s perspectives of their care to produce narratives of Aboriginal cancer experience, whilst developing and testing a methodology, and exploring the issues and methods around linking coded narratives with health outcome data.

The PANDORA (Pregnancy and Adverse Neonatal Diabetes Outcomes in Remote Australia) study will accurately document rates and outcomes of diabetes in pregnancy in the Northern Territory, including the high-risk Indigenous Australian population.

TEAMSnet is a tele-retinal imaging and web-based chronic disease decision support intervention in 3 Aboriginal communities in the Northern Territory that seeks to optimise health outcomes for Aboriginal people. 

The Kanyini Vascular Collaboration aims to identify and overcome barriers to best practice chronic disease care for Aboriginal and Torres Strait Islander people in primary care.

Next Steps aims to identify and prioritise the main public health research priorities within the Aboriginal Community Controlled Health Sector in South Australia and to identify how research can be conducted more appropriately with the Aboriginal community in South Australia.

Aboriginal people in South Australia experience significant differentials in cardiovascular disease burden and mortality compared to their non-Indigenous counterparts. As such, a focused effort on reducing disparities in cardiovascular disease and care can have a significant impact on life expectancy differentials.

The Central Australian Heart Protection Study (CAHPS) tests the effectiveness of a nurse-led, family based education and assessment program for reducing the incidence of poor outcomes following a hospital admission for an acute cardiac event.

The ESSENCE (Essential Service Standards for Equitable National Cardiovascular carE for Aboriginal and Torres Strait Islander people) Project has developed, through expert consensus, a set of service standards in cardiovascular care that are essential to improving outcomes  irrespective of where they live or what their ethnicity is. 

ESSENCE II incorporates two projects and progresses the development of the Standards towards the vision of full implementation across Australia. 

The “Communicate” project explores the in-hospital communication experiences of urban, rural and remote Aboriginal and Torres Strait Islander acute cardiac patients, their families and health care providers.

It is being conducted in urban and regional settings in South Australia and the Northern Territory.

All stages of the in-hospital experience are being considered including referral into the service, presentation at the Emergency Department, hospital admission, ward experience, informed consent re procedure, during procedural intervention, during recovery, discharge and outpatient referral.

It is funded through a Heart Foundation Focus Grant and is based at South Australian Health & Medical Research Institute (SAHMRI).

Diabetes is an on-going and growing concern for Aboriginal people in South Australia. The Wardliparingga, Aboriginal Research Unit of SAHMRI is establishing a large program of work that will deliver high quality scientific research, raise the Aboriginal community’s awareness of diabetes its prevention, management and consequences, and use knowledge gathered to inform policy and practice. 

The development of a Type 2 Diabetes Strategy for Aboriginal people in South Australia is an opportunity for the Aboriginal community in collaboration with all leading service providers to inform policy and practice of diabetes care provision across the state. The method for developing the Strategy has been informed by the Aboriginal Health Council of South Australia (AHCSA) Board and SA Health is funding its development.

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SAHMRI is located on the traditional lands of the Kaurna Nation.

The SAHMRI community acknowledges and respects the traditional owners, the family clans who are the Kaurna Nation from the Adelaide Plains region of South Australia. We acknowledge the clans of the Kaurna Nation and the sacred knowledge they hold for their country. We pay our respects to the Kaurna Nation, their ancestors and the descendants of these living family clans today.